Gillian Exley

Mom to two amazing kids - one of whom has special needs. Wife to mountain-biker/race-organizer Stephen. I teach High School Drama/Musical Theatre. I read endlessly about brain injury recovery and epilepsy research in a quest to give my daughter an incredible life.

hello Summer!

Okay, it’s been awhile. But really, other than Grampa Ed and Dara and Kim and Aunt Cindy and my mom, who really reads this thing? ha. I’m going to stop apologizing everytime I start a…

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Lola’s Big Day

Today was Lola’s year-end celebration at school. Deannie rehearsed and practised, practised and rehearsed so that Lola could participate in the songs and ceremony. It was a big deal. Lots of patience, waiting, following instructions…

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argh

Okay, so I took pity on you poor blog readers and updated you a couple of weeks ago, but it won’t post. So it’s hanging out in my draft folder and I’m so great with…

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Long overdue post!

Okay, so I haven’t been the best blogger lately. In my defense, I’ve been kinda busy. Lame excuse, but it’s my blog so I can do things like that. Lola is still on the ketogenic…

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Waiting for spring…

It’s been a tough few months on the seizure front. And where the diet’s concerned. The past couple have days have been a bit of a reprieve from the “norm” and that’s been great. Amazing…

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GRIT Conference

I was asked, along with two other parents, to share our story at Lola’s school conference. So I wanted to also share my speech on Lola’s blog, as some of you might not know how…

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….just whispering….

……don’t want to jinx anything, but Lola has had NO seizures today. I can’t believe I’m writing that. Every morning for nearly a year, we’ve watched Lola have a massive tonic seizure in her chair…

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Hello 2011!

This is Lola’s friend, Abby May. She passed away Thursday evening after a lengthy battle with mitochondrial disease. Many prayers for her mom, dad and brother as they mourn her loss. Such a sweet girl….

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seizures suck

Liam and his pal, Abby – who lives across the street. This bunny’s sick of trick or treating and wants outta the bunny suit. Where’s the good stuff? There. I’ve said it. And waiting and…

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