Mom to two amazing kids - one of whom has special needs. Wife to mountain-biker/race-organizer Stephen. I teach High School Drama/Musical Theatre. I read endlessly about brain injury recovery and epilepsy research in a quest to give my daughter an incredible life.
Today was Lola’s year-end celebration at school. Deannie rehearsed and practised, practised and rehearsed so that Lola could participate in the songs and ceremony. It was a big deal. Lots of patience, waiting, following instructions…
I found this awesome piece today while surfing around – it’s available http://www.etsy.com/listing/71249981/i-believe5-x-7 in this etsy shop – sadly, no delivery to Canada. Still an awesome quote though!
This is Lola’s friend, Abby May. She passed away Thursday evening after a lengthy battle with mitochondrial disease. Many prayers for her mom, dad and brother as they mourn her loss. Such a sweet girl….
After contracting viral encephalitis at the age of two and a half, my daughter Lola has struggled to re-learn all her lost skills. Lola is non-verbal, and suffers from intractable epilepsy. She is an incredible girl, and our journey has been filled with joy among our struggle. This is a chronicle of her ongoing journey.