Though she be but little, she is fierce.
This is a story of a little girl who has overcome great odds to be where she is today. After contracting viral encephalitis at the age of two and a half, she has struggled to re-learn all her lost skills. Lola is non-verbal, and suffers from intractible epilepsy. We have tried many therapies, both drug and dietary, to control her seizures – currently she is on the Ketogenic Diet, Rufinamide, Trileptal and Valproic Acid, and receives intravenous immunoglobulin every three weeks. Despite the seizures, she’s learning new tricks everyday. She is an incredible girl, and our journey has been filled with joy among our struggle. It’s been a difficult journey, but we’re not finished yet. Lola will be undergoing a Corpus Callosotomy at the Alberta Children’s Hospital in early January in an attempt to further control her seizures.
Lola is now six years old and attends school in a specialized setting with one-to-one attention from her teachers and ed assistants. At school, her learning is focused on communication and socialization. She loves her teachers, and shares her spirited and sassy personality with them daily.
Lola’s Dad (Stephen) is an avid downhill mountain biker, and race organizer. He has channelled his love for biking with his love for his family and now hosts three events on the BC Cup circuit with proceeds aiding Lola’s recovery. You can link to Steve’s racing site by clicking on the TEAM LOLA tab.