Our big news this month is that Lola has found her right hand! Yay! She’s not 100% with it yet, but she is using it all the time to help carry big books and toys, her sippy cup, etc. Wow, what a miracle! She hasn’t used that hand in over two years – neuroplasticity at its finest! We’re pretty excited about it. Finally, Deannie got to see her use it this week – she’d been hiding her talents up till now.
Another trick is to walk down the stairs while holding onto the railing. She used to scoot down on her bum – safe and easy. The problem is that our railings are on the right side. So she will try to cross her arm across and hold on with her left hand – which is a problem. We’re working on it! She is alternating feet when going up the stairs as well – pretty cool!
Seizure-wise, we’re not seeing the miracle we had hoped – at least not yet. The diet’s restrictions are draining on us. I spend easily an hour each day preparing her meals – before I leave for work in the morning, I pack Liam’s lunch, get his breakfast ready, measure out Lola’s breakfast (scrambled egg,cream,butter,raspberries,bacon, “juice”), then measure out and pre-pack Lola’s snack for school (bacon, lettuce, tomato,cucumber,butter/cream as dressing), her lunch (a variety of things), her afternoon snack (see a.m. snack), and her supper. It’s a lot. We’ve tweaked the diet ratio to 3.25-1 as per Lola’s dietician. We’ll see if there are any changes.
We’re bored of this weather, and of feeling stuck in the house, in a rut, in our lives. The days and commute are exhausting. We’re waiting for spring like everyone else. Liam is finishing up indoor soccer, and is having fun at gymnastics. We’ll be signing him up for baseball in the spring as well.
Steve says that Lola’s up from her nap! Gotta go!