Feature_Newlife_03

Six Weeks Post-Op

So what does our life look like, six weeks post surgery? It’s pretty incredible. After the CSF collection on top of Lola’s head magically dissipated, she slowly got her mojo back, got off the couch…

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A Whole New Life…

It’s difficult to articulate how incredible this gift has been for our family, but more specifically, to Lola. This gift I’m talking to is a seizure-free life. After making the incredibly difficult decision to allow...

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Happiness can be found even in the darkest of times, if one only remembers to turn on the light....

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Feature_LolaSix

Reflections

Lola, you’re six years old today! I can’t believe it – that just sounds so old to me. You’re getting to be such a big girl – you’re so tall! You’re also so sweet and…

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Fly-by

Here’s a picture from today. Lola rarely smiles for the camera – so of course we’re loving this one! We’re hanging in here with the med wean – some good day, some awful ones. We’re…

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Bah Humbug

We don’t like Halloween. Okay, Liam does, but for the rest of the family, it brings back the reminder of where we were three years ago – before this part of Lola’s journey began. We…

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