Gillian Exley

Mom to two amazing kids - one of whom has special needs. Wife to mountain-biker/race-organizer Stephen. I teach High School Drama/Musical Theatre. I read endlessly about brain injury recovery and epilepsy research in a quest to give my daughter an incredible life.

Big Decisions…

  As the school year wraps up, I’ve found myself fixated on what I can make better for Lola where school is concerned. Don’t get me wrong…I love her current teachers, and she has had...

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car rides

Ode to my brother

Here sits my lovely blog, hand-crafted by my talented brother, and safeguarded by his team. I’ve left it on a dusty shelf for several weeks. Well, as luck would have it, my brother happens to…

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liam&mom

Non-compliant…

Well, we weren’t too successful at our Neuropsych appointment yesterday. As in, Lola barely made it past the front desk before she was deemed “non-compliant” and shown the door. I’m always surprised when we have…

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Lucky Number 7

Unbelievable that this small, mighty wee girl is seven years old. Even more unbelievable is that she is still seizure-free, nearly six months from her surgery. Lola’s corpus callosotomy was a success in many ways,…

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It’s All Good!

Somebody’s been naughty. And by naughty I don’t mean sneaking an extra cookie or taking something that’s not hers. I mean breaking things, slamming things, hitting things (and people), running away, and throwing tantrums of…

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Six Weeks Post-Op

So what does our life look like, six weeks post surgery? It’s pretty incredible. After the CSF collection on top of Lola’s head magically dissipated, she slowly got her mojo back, got off the couch…

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A Whole New Life…

It’s difficult to articulate how incredible this gift has been for our family, but more specifically, to Lola. This gift I’m talking to is a seizure-free life. After making the incredibly difficult decision to allow...

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Christmas Re-cap

  The kids were lucky enough to have Grama and Grampa visiting this Christmas. Monopoly, chess, and even some wii were played. Liam got to do some skating with his cousin as well. Daddy took…

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Happiness can be found even in the darkest of times, if one only remembers to turn on the light....

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