Gillian Exley

Mom to two amazing kids - one of whom has special needs. Wife to mountain-biker/race-organizer Stephen. I teach High School Drama/Musical Theatre. I read endlessly about brain injury recovery and epilepsy research in a quest to give my daughter an incredible life.

liam&mom

Non-compliant…

Well, we weren’t too successful at our Neuropsych appointment yesterday. As in, Lola barely made it past the front desk before she was deemed “non-compliant” and shown the door. I’m always surprised when we have…

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Lucky Number 7

Unbelievable that this small, mighty wee girl is seven years old. Even more unbelievable is that she is still seizure-free, nearly six months from her surgery. Lola’s corpus callosotomy was a success in many ways,…

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It’s All Good!

Somebody’s been naughty. And by naughty I don’t mean sneaking an extra cookie or taking something that’s not hers. I mean breaking things, slamming things, hitting things (and people), running away, and throwing tantrums of…

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Six Weeks Post-Op

So what does our life look like, six weeks post surgery? It’s pretty incredible. After the CSF collection on top of Lola’s head magically dissipated, she slowly got her mojo back, got off the couch…

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A Whole New Life…

It’s difficult to articulate how incredible this gift has been for our family, but more specifically, to Lola. This gift I’m talking to is a seizure-free life. After making the incredibly difficult decision to allow...

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A Cog in the Wheel

After stressing out and obsessing over Lola’s surgery for three months, we were raring to go early Wednesday morning – 5:30 in the morning to be precise. I can’t explain to you just how scared…

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Christmas Re-cap

  The kids were lucky enough to have Grama and Grampa visiting this Christmas. Monopoly, chess, and even some wii were played. Liam got to do some skating with his cousin as well. Daddy took…

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Happiness can be found even in the darkest of times, if one only remembers to turn on the light....

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